Development and application of the ACTIVE framework to describe stakeholder involvement in systematic reviews

Alex Pollock, Pauline Campbell, Anneliese Synnot, Jacqui Morris, Jack Nunn, Heather Goodare, Chris W. Watts, Richard Morley, Pauline Campbell

Research output: Contribution to journalMeeting abstract

Abstract

Background: Involvement of patients, health professionals, the public and others (stakeholders) is beneficial to
the quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews.
However, there is a lack of evidence and resources to guide systematic review authors in how they can actively
involve stakeholders in their reviews.
Objectives: To develop a framework (the 'ACTIVE framework') to describe how stakeholders are involved in
systematic reviews and to apply this framework to describe stakeholder involvement in a series of systematic
reviews.
Methods: We systematically extracted and tabulated data relating to 32 systematic reviews (previously identified
in a systematic scoping review) within which methods of stakeholder involvement had been described. Data were
categorised against pre-defined constructs, including: who was involved, how people were recruited, what
happened, when there was involvement and how much involvement. A draft ACTIVE framework was refined after
presentation at a conference workshop.
Results: The ACTIVE framework defined whether patients, carers and/or families, or other stakeholders were
involved. The method of recruitment was defined as either open or closed, and the approach to involvement as
either one-time, continuous or combined. The format of involvement was defined as either direct or indirect
interaction. The stage of involvement was defined using the Cochrane Ecosystem stages of a review, and the data
suggested that a 'top and tail' approach was common. The level of involvement of stakeholders was defined according to the roles and activities of stakeholders in the review process, and described as a hierarchy of involvement. Data from the 32 systematic reviews were mapped to the framework constructs and brought together within a summary table.
Conclusions: The ACTIVE framework provides a structure that summarises key components of stakeholder involvement within a systematic review. We have used this ACTIVE framework to summarise how stakeholders have been involved in a range of example systematic reviews. This framework may support the decision-making of systematic review authors planning how to involve stakeholders in future reviews. Patient or healthcare consumer involvement: Three stakeholder representatives were involved as co-applicants and authors.
Original languageEnglish
Pages (from-to)106
JournalCochrane Database of Systematic Reviews
Volume9
Issue numberSuppl 1
DOIs
Publication statusPublished - 2018
Event25th Cochrane Colloquium 2018 - Edinburgh
Duration: 16 Sep 201818 Sep 2018

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Cite this

Pollock, Alex ; Campbell, Pauline ; Synnot, Anneliese ; Morris, Jacqui ; Nunn, Jack ; Goodare, Heather ; Watts, Chris W. ; Morley, Richard ; Campbell, Pauline. / Development and application of the ACTIVE framework to describe stakeholder involvement in systematic reviews. In: Cochrane Database of Systematic Reviews. 2018 ; Vol. 9, No. Suppl 1. pp. 106.
@article{6e07a7cb9b7c4161a049e35fdcdeab81,
title = "Development and application of the ACTIVE framework to describe stakeholder involvement in systematic reviews",
abstract = "Background: Involvement of patients, health professionals, the public and others (stakeholders) is beneficial tothe quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews.However, there is a lack of evidence and resources to guide systematic review authors in how they can activelyinvolve stakeholders in their reviews.Objectives: To develop a framework (the 'ACTIVE framework') to describe how stakeholders are involved insystematic reviews and to apply this framework to describe stakeholder involvement in a series of systematicreviews.Methods: We systematically extracted and tabulated data relating to 32 systematic reviews (previously identifiedin a systematic scoping review) within which methods of stakeholder involvement had been described. Data werecategorised against pre-defined constructs, including: who was involved, how people were recruited, whathappened, when there was involvement and how much involvement. A draft ACTIVE framework was refined afterpresentation at a conference workshop.Results: The ACTIVE framework defined whether patients, carers and/or families, or other stakeholders wereinvolved. The method of recruitment was defined as either open or closed, and the approach to involvement aseither one-time, continuous or combined. The format of involvement was defined as either direct or indirectinteraction. The stage of involvement was defined using the Cochrane Ecosystem stages of a review, and the datasuggested that a 'top and tail' approach was common. The level of involvement of stakeholders was defined according to the roles and activities of stakeholders in the review process, and described as a hierarchy of involvement. Data from the 32 systematic reviews were mapped to the framework constructs and brought together within a summary table.Conclusions: The ACTIVE framework provides a structure that summarises key components of stakeholder involvement within a systematic review. We have used this ACTIVE framework to summarise how stakeholders have been involved in a range of example systematic reviews. This framework may support the decision-making of systematic review authors planning how to involve stakeholders in future reviews. Patient or healthcare consumer involvement: Three stakeholder representatives were involved as co-applicants and authors.",
author = "Alex Pollock and Pauline Campbell and Anneliese Synnot and Jacqui Morris and Jack Nunn and Heather Goodare and Watts, {Chris W.} and Richard Morley and Pauline Campbell",
year = "2018",
doi = "10.1002/14651858.CD201801.",
language = "English",
volume = "9",
pages = "106",
journal = "Cochrane Database of Systematic Reviews",
issn = "1469-493X",
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}

Pollock, A, Campbell, P, Synnot, A, Morris, J, Nunn, J, Goodare, H, Watts, CW, Morley, R & Campbell, P 2018, 'Development and application of the ACTIVE framework to describe stakeholder involvement in systematic reviews', Cochrane Database of Systematic Reviews, vol. 9, no. Suppl 1, pp. 106. https://doi.org/10.1002/14651858.CD201801.

Development and application of the ACTIVE framework to describe stakeholder involvement in systematic reviews. / Pollock, Alex; Campbell, Pauline; Synnot, Anneliese; Morris, Jacqui; Nunn, Jack; Goodare, Heather; Watts, Chris W.; Morley, Richard; Campbell, Pauline.

In: Cochrane Database of Systematic Reviews, Vol. 9, No. Suppl 1, 2018, p. 106.

Research output: Contribution to journalMeeting abstract

TY - JOUR

T1 - Development and application of the ACTIVE framework to describe stakeholder involvement in systematic reviews

AU - Pollock, Alex

AU - Campbell, Pauline

AU - Synnot, Anneliese

AU - Morris, Jacqui

AU - Nunn, Jack

AU - Goodare, Heather

AU - Watts, Chris W.

AU - Morley, Richard

AU - Campbell, Pauline

PY - 2018

Y1 - 2018

N2 - Background: Involvement of patients, health professionals, the public and others (stakeholders) is beneficial tothe quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews.However, there is a lack of evidence and resources to guide systematic review authors in how they can activelyinvolve stakeholders in their reviews.Objectives: To develop a framework (the 'ACTIVE framework') to describe how stakeholders are involved insystematic reviews and to apply this framework to describe stakeholder involvement in a series of systematicreviews.Methods: We systematically extracted and tabulated data relating to 32 systematic reviews (previously identifiedin a systematic scoping review) within which methods of stakeholder involvement had been described. Data werecategorised against pre-defined constructs, including: who was involved, how people were recruited, whathappened, when there was involvement and how much involvement. A draft ACTIVE framework was refined afterpresentation at a conference workshop.Results: The ACTIVE framework defined whether patients, carers and/or families, or other stakeholders wereinvolved. The method of recruitment was defined as either open or closed, and the approach to involvement aseither one-time, continuous or combined. The format of involvement was defined as either direct or indirectinteraction. The stage of involvement was defined using the Cochrane Ecosystem stages of a review, and the datasuggested that a 'top and tail' approach was common. The level of involvement of stakeholders was defined according to the roles and activities of stakeholders in the review process, and described as a hierarchy of involvement. Data from the 32 systematic reviews were mapped to the framework constructs and brought together within a summary table.Conclusions: The ACTIVE framework provides a structure that summarises key components of stakeholder involvement within a systematic review. We have used this ACTIVE framework to summarise how stakeholders have been involved in a range of example systematic reviews. This framework may support the decision-making of systematic review authors planning how to involve stakeholders in future reviews. Patient or healthcare consumer involvement: Three stakeholder representatives were involved as co-applicants and authors.

AB - Background: Involvement of patients, health professionals, the public and others (stakeholders) is beneficial tothe quality, relevance and impact of research and may enhance the usefulness and uptake of systematic reviews.However, there is a lack of evidence and resources to guide systematic review authors in how they can activelyinvolve stakeholders in their reviews.Objectives: To develop a framework (the 'ACTIVE framework') to describe how stakeholders are involved insystematic reviews and to apply this framework to describe stakeholder involvement in a series of systematicreviews.Methods: We systematically extracted and tabulated data relating to 32 systematic reviews (previously identifiedin a systematic scoping review) within which methods of stakeholder involvement had been described. Data werecategorised against pre-defined constructs, including: who was involved, how people were recruited, whathappened, when there was involvement and how much involvement. A draft ACTIVE framework was refined afterpresentation at a conference workshop.Results: The ACTIVE framework defined whether patients, carers and/or families, or other stakeholders wereinvolved. The method of recruitment was defined as either open or closed, and the approach to involvement aseither one-time, continuous or combined. The format of involvement was defined as either direct or indirectinteraction. The stage of involvement was defined using the Cochrane Ecosystem stages of a review, and the datasuggested that a 'top and tail' approach was common. The level of involvement of stakeholders was defined according to the roles and activities of stakeholders in the review process, and described as a hierarchy of involvement. Data from the 32 systematic reviews were mapped to the framework constructs and brought together within a summary table.Conclusions: The ACTIVE framework provides a structure that summarises key components of stakeholder involvement within a systematic review. We have used this ACTIVE framework to summarise how stakeholders have been involved in a range of example systematic reviews. This framework may support the decision-making of systematic review authors planning how to involve stakeholders in future reviews. Patient or healthcare consumer involvement: Three stakeholder representatives were involved as co-applicants and authors.

UR - https://doi.org/10.1002/14651858.CD201801.

U2 - 10.1002/14651858.CD201801.

DO - 10.1002/14651858.CD201801.

M3 - Meeting abstract

VL - 9

SP - 106

JO - Cochrane Database of Systematic Reviews

JF - Cochrane Database of Systematic Reviews

SN - 1469-493X

IS - Suppl 1

ER -