Nurse specialists in adult congenital heart disease: the current status in Europe

Philip Moons, Wilma Scholte op Reimer, Sabina De Geest, Bengt Fridlund, J. Heikkila, Tiny Jaarsma, Jan Martensson, Karen Smith, Simon Stewart, Anna Stromberg, David R. Thompson

    Research output: Contribution to journalArticle

    21 Citations (Scopus)

    Abstract

    Aim: Recommendations for the management of adults with congenital heart disease indicate that specialist referral centres should employ nurse specialists who are trained and educated in the care for these patients. We surveyed the involvement, education and activities of nurse specialists in the care for adults with congenital cardiac anomalies in Europe. Methods The Euro Heart Survey on Adult Congenital Heart Disease has previously showed that 20 out of 48 specialist centres (42%) have nurse specialists affiliated with their programme. Fifteen of these 20 centres (75%) validly completed a web-based survey tool. Results Specialist centres had a median number of 2 nurse specialists on staff, corresponding with 1 full-time equivalent. In most centres, the nurse specialists were also affiliated with other cardiac care programmes, in addition to congenital heart disease. The involvement of nurse specialists was not related to the caseload of inpatients and outpatient visits. Physical examination was the most prevalent activity undertaken by nurse specialists (93.3%), followed by telephone accessibility (86.7%), patient education (86.7%), co-ordination of care (73.3%), and follow-up after discharge (73.3%). Patient education covered mainly prevention and prophylaxis of endocarditis (100%), cardiovascular risk factors (92.3%), sport activities (92.3%), the type and characteristics of the heart defect (92.3%), the definition and aetiology of endocarditis (84.6%), cardiac risk in case of pregnancy (84.6%), and heredity (84.6%). Two third of the nurse specialists were involved in research. Conclusion This survey revealed gaps in the provision of care for these patients in Europe and demonstrated that there is room for improvement in order to provide adequate chronic disease management. The results of this study can be used by individual hospitals for benchmarking.
    Original languageEnglish
    Pages (from-to)60-67
    Number of pages8
    JournalEuropean Journal of Cardiovascular Nursing
    Volume5
    Issue number1
    DOIs
    Publication statusPublished - Mar 2006

    Fingerprint

    Heart Diseases
    Patient Education
    Endocarditis
    Patient Care
    Benchmarking
    Aftercare
    Heredity
    Nurse Specialists
    Disease Management
    Telephone
    Physical Examination
    Sports
    Inpatients
    Chronic Disease
    Outpatients
    Referral and Consultation
    Education
    Pregnancy
    Research
    Surveys and Questionnaires

    Keywords

    • Congenital heart disease
    • Health care survey
    • Health personnel
    • Provision of care
    • Advanced nursing practice
    • Specialisation

    Cite this

    Moons, P., Scholte op Reimer, W., De Geest, S., Fridlund, B., Heikkila, J., Jaarsma, T., ... Thompson, D. R. (2006). Nurse specialists in adult congenital heart disease: the current status in Europe. European Journal of Cardiovascular Nursing, 5(1), 60-67. https://doi.org/10.1016/j.ejcnurse.2005.10.010
    Moons, Philip ; Scholte op Reimer, Wilma ; De Geest, Sabina ; Fridlund, Bengt ; Heikkila, J. ; Jaarsma, Tiny ; Martensson, Jan ; Smith, Karen ; Stewart, Simon ; Stromberg, Anna ; Thompson, David R. / Nurse specialists in adult congenital heart disease: the current status in Europe. In: European Journal of Cardiovascular Nursing. 2006 ; Vol. 5, No. 1. pp. 60-67.
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    abstract = "Aim: Recommendations for the management of adults with congenital heart disease indicate that specialist referral centres should employ nurse specialists who are trained and educated in the care for these patients. We surveyed the involvement, education and activities of nurse specialists in the care for adults with congenital cardiac anomalies in Europe. Methods The Euro Heart Survey on Adult Congenital Heart Disease has previously showed that 20 out of 48 specialist centres (42{\%}) have nurse specialists affiliated with their programme. Fifteen of these 20 centres (75{\%}) validly completed a web-based survey tool. Results Specialist centres had a median number of 2 nurse specialists on staff, corresponding with 1 full-time equivalent. In most centres, the nurse specialists were also affiliated with other cardiac care programmes, in addition to congenital heart disease. The involvement of nurse specialists was not related to the caseload of inpatients and outpatient visits. Physical examination was the most prevalent activity undertaken by nurse specialists (93.3{\%}), followed by telephone accessibility (86.7{\%}), patient education (86.7{\%}), co-ordination of care (73.3{\%}), and follow-up after discharge (73.3{\%}). Patient education covered mainly prevention and prophylaxis of endocarditis (100{\%}), cardiovascular risk factors (92.3{\%}), sport activities (92.3{\%}), the type and characteristics of the heart defect (92.3{\%}), the definition and aetiology of endocarditis (84.6{\%}), cardiac risk in case of pregnancy (84.6{\%}), and heredity (84.6{\%}). Two third of the nurse specialists were involved in research. Conclusion This survey revealed gaps in the provision of care for these patients in Europe and demonstrated that there is room for improvement in order to provide adequate chronic disease management. The results of this study can be used by individual hospitals for benchmarking.",
    keywords = "Congenital heart disease, Health care survey, Health personnel, Provision of care, Advanced nursing practice, Specialisation",
    author = "Philip Moons and {Scholte op Reimer}, Wilma and {De Geest}, Sabina and Bengt Fridlund and J. Heikkila and Tiny Jaarsma and Jan Martensson and Karen Smith and Simon Stewart and Anna Stromberg and Thompson, {David R.}",
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    Moons, P, Scholte op Reimer, W, De Geest, S, Fridlund, B, Heikkila, J, Jaarsma, T, Martensson, J, Smith, K, Stewart, S, Stromberg, A & Thompson, DR 2006, 'Nurse specialists in adult congenital heart disease: the current status in Europe', European Journal of Cardiovascular Nursing, vol. 5, no. 1, pp. 60-67. https://doi.org/10.1016/j.ejcnurse.2005.10.010

    Nurse specialists in adult congenital heart disease: the current status in Europe. / Moons, Philip; Scholte op Reimer, Wilma; De Geest, Sabina; Fridlund, Bengt; Heikkila, J.; Jaarsma, Tiny; Martensson, Jan; Smith, Karen; Stewart, Simon; Stromberg, Anna; Thompson, David R.

    In: European Journal of Cardiovascular Nursing, Vol. 5, No. 1, 03.2006, p. 60-67.

    Research output: Contribution to journalArticle

    TY - JOUR

    T1 - Nurse specialists in adult congenital heart disease: the current status in Europe

    AU - Moons, Philip

    AU - Scholte op Reimer, Wilma

    AU - De Geest, Sabina

    AU - Fridlund, Bengt

    AU - Heikkila, J.

    AU - Jaarsma, Tiny

    AU - Martensson, Jan

    AU - Smith, Karen

    AU - Stewart, Simon

    AU - Stromberg, Anna

    AU - Thompson, David R.

    N1 - dc.publisher: Elsevier Built on earlier research assessing risk factors in nurses in order to aid in the assessment of staff's ability to predict their own risk of cardiovascular events. Research Group 4 - Quality of Life and Quality of Care in Acute and Chronic Illness.

    PY - 2006/3

    Y1 - 2006/3

    N2 - Aim: Recommendations for the management of adults with congenital heart disease indicate that specialist referral centres should employ nurse specialists who are trained and educated in the care for these patients. We surveyed the involvement, education and activities of nurse specialists in the care for adults with congenital cardiac anomalies in Europe. Methods The Euro Heart Survey on Adult Congenital Heart Disease has previously showed that 20 out of 48 specialist centres (42%) have nurse specialists affiliated with their programme. Fifteen of these 20 centres (75%) validly completed a web-based survey tool. Results Specialist centres had a median number of 2 nurse specialists on staff, corresponding with 1 full-time equivalent. In most centres, the nurse specialists were also affiliated with other cardiac care programmes, in addition to congenital heart disease. The involvement of nurse specialists was not related to the caseload of inpatients and outpatient visits. Physical examination was the most prevalent activity undertaken by nurse specialists (93.3%), followed by telephone accessibility (86.7%), patient education (86.7%), co-ordination of care (73.3%), and follow-up after discharge (73.3%). Patient education covered mainly prevention and prophylaxis of endocarditis (100%), cardiovascular risk factors (92.3%), sport activities (92.3%), the type and characteristics of the heart defect (92.3%), the definition and aetiology of endocarditis (84.6%), cardiac risk in case of pregnancy (84.6%), and heredity (84.6%). Two third of the nurse specialists were involved in research. Conclusion This survey revealed gaps in the provision of care for these patients in Europe and demonstrated that there is room for improvement in order to provide adequate chronic disease management. The results of this study can be used by individual hospitals for benchmarking.

    AB - Aim: Recommendations for the management of adults with congenital heart disease indicate that specialist referral centres should employ nurse specialists who are trained and educated in the care for these patients. We surveyed the involvement, education and activities of nurse specialists in the care for adults with congenital cardiac anomalies in Europe. Methods The Euro Heart Survey on Adult Congenital Heart Disease has previously showed that 20 out of 48 specialist centres (42%) have nurse specialists affiliated with their programme. Fifteen of these 20 centres (75%) validly completed a web-based survey tool. Results Specialist centres had a median number of 2 nurse specialists on staff, corresponding with 1 full-time equivalent. In most centres, the nurse specialists were also affiliated with other cardiac care programmes, in addition to congenital heart disease. The involvement of nurse specialists was not related to the caseload of inpatients and outpatient visits. Physical examination was the most prevalent activity undertaken by nurse specialists (93.3%), followed by telephone accessibility (86.7%), patient education (86.7%), co-ordination of care (73.3%), and follow-up after discharge (73.3%). Patient education covered mainly prevention and prophylaxis of endocarditis (100%), cardiovascular risk factors (92.3%), sport activities (92.3%), the type and characteristics of the heart defect (92.3%), the definition and aetiology of endocarditis (84.6%), cardiac risk in case of pregnancy (84.6%), and heredity (84.6%). Two third of the nurse specialists were involved in research. Conclusion This survey revealed gaps in the provision of care for these patients in Europe and demonstrated that there is room for improvement in order to provide adequate chronic disease management. The results of this study can be used by individual hospitals for benchmarking.

    KW - Congenital heart disease

    KW - Health care survey

    KW - Health personnel

    KW - Provision of care

    KW - Advanced nursing practice

    KW - Specialisation

    U2 - 10.1016/j.ejcnurse.2005.10.010

    DO - 10.1016/j.ejcnurse.2005.10.010

    M3 - Article

    VL - 5

    SP - 60

    EP - 67

    JO - European Journal of Cardiovascular Nursing

    JF - European Journal of Cardiovascular Nursing

    SN - 1474-5151

    IS - 1

    ER -