Patients' experiences of disruptions associated with post-stroke dysarthria

Sylvia Dickson, Rosaline S. Barbour, Marian Brady, Alexander M. Clark, Gillian Paton

    Research output: Contribution to journalArticle

    44 Citations (Scopus)

    Abstract

    BACKGROUND: Post-stroke dysarthria rehabilitation should consider social participation for people with dysarthria, but before this approach can be adopted, an understanding of the psychosocial impact of dysarthria is required. Despite the prevalence of dysarthria as a result of stroke, there is a paucity of research into this communication disorder, particularly studies that address the experiences of individuals. The available literature focuses mainly on the perceptions of others or includes groups of mixed aetiologies. AIMS: To investigate the beliefs and experiences of people with dysarthria as a result of stroke in relation to their speech disorder, and to explore the perceived physical, personal and psychosocial impacts of living with dysarthria. METHODS & PROCEDURES: Participants for this qualitative study were recruited from twelve hospitals in Scotland that served both rural and urban populations and afforded opportunity for comparison. Semi-structured, in-depth interviews were carried out over a 12-month period with 24 individuals with varying severity of dysarthria following stroke. The interviews were orthographically transcribed and coded using the NVivo package, which also facilitated identification of patterns using the constant comparative method. OUTCOMES & RESULTS: The results of the study indicate that the effects of dysarthria following stroke extend beyond the physiological characteristics of the impairment. In turn, the resulting communication difficulties lead to changes in self-identity, relationships, social and emotional disruptions, and feelings of stigmatization or perceived stigmatization. The impact of dysarthria was found to be disproportionate to the physiological severity, with participants continually striving to get their speech back to 'normal'. CONCLUSIONS & IMPLICATIONS: The findings provide insight into the psychosocial impact of dysarthria following stroke. Speech and language therapy interventions need to go beyond the speech impairment to address and promote psychosocial well being, reduce the likelihood of feelings of stigmatization and changes in self-identity, irrespective of the severity of dysarthria.
    Original languageEnglish
    Pages (from-to)135-153
    Number of pages19
    JournalInternational Journal of Language and Communication Disorders
    Volume43
    Issue number2
    DOIs
    Publication statusPublished - 2008

    Fingerprint

    Dysarthria
    stroke
    Stroke
    stigmatization
    experience
    Stereotyping
    communication disorder
    social participation
    speech disorder
    urban population
    rural population
    interview
    Emotions
    rehabilitation
    Patient Experience
    Disruption
    Interviews
    Language Therapy
    Social Participation
    well-being

    Keywords

    • Stroke
    • Dysarthria
    • Rehabilitation
    • Psychosocial
    • Severity

    Cite this

    Dickson, Sylvia ; Barbour, Rosaline S. ; Brady, Marian ; Clark, Alexander M. ; Paton, Gillian. / Patients' experiences of disruptions associated with post-stroke dysarthria. In: International Journal of Language and Communication Disorders. 2008 ; Vol. 43, No. 2. pp. 135-153.
    @article{9500549f0abc44c6b669e45e3dbaeb3f,
    title = "Patients' experiences of disruptions associated with post-stroke dysarthria",
    abstract = "BACKGROUND: Post-stroke dysarthria rehabilitation should consider social participation for people with dysarthria, but before this approach can be adopted, an understanding of the psychosocial impact of dysarthria is required. Despite the prevalence of dysarthria as a result of stroke, there is a paucity of research into this communication disorder, particularly studies that address the experiences of individuals. The available literature focuses mainly on the perceptions of others or includes groups of mixed aetiologies. AIMS: To investigate the beliefs and experiences of people with dysarthria as a result of stroke in relation to their speech disorder, and to explore the perceived physical, personal and psychosocial impacts of living with dysarthria. METHODS & PROCEDURES: Participants for this qualitative study were recruited from twelve hospitals in Scotland that served both rural and urban populations and afforded opportunity for comparison. Semi-structured, in-depth interviews were carried out over a 12-month period with 24 individuals with varying severity of dysarthria following stroke. The interviews were orthographically transcribed and coded using the NVivo package, which also facilitated identification of patterns using the constant comparative method. OUTCOMES & RESULTS: The results of the study indicate that the effects of dysarthria following stroke extend beyond the physiological characteristics of the impairment. In turn, the resulting communication difficulties lead to changes in self-identity, relationships, social and emotional disruptions, and feelings of stigmatization or perceived stigmatization. The impact of dysarthria was found to be disproportionate to the physiological severity, with participants continually striving to get their speech back to 'normal'. CONCLUSIONS & IMPLICATIONS: The findings provide insight into the psychosocial impact of dysarthria following stroke. Speech and language therapy interventions need to go beyond the speech impairment to address and promote psychosocial well being, reduce the likelihood of feelings of stigmatization and changes in self-identity, irrespective of the severity of dysarthria.",
    keywords = "Stroke, Dysarthria, Rehabilitation, Psychosocial, Severity",
    author = "Sylvia Dickson and Barbour, {Rosaline S.} and Marian Brady and Clark, {Alexander M.} and Gillian Paton",
    note = "dc.publisher: Informa Healthcare",
    year = "2008",
    doi = "10.1080/13682820701862228",
    language = "English",
    volume = "43",
    pages = "135--153",
    journal = "International Journal of Language and Communication Disorders",
    issn = "1368-2822",
    publisher = "Wiley",
    number = "2",

    }

    Patients' experiences of disruptions associated with post-stroke dysarthria. / Dickson, Sylvia; Barbour, Rosaline S.; Brady, Marian; Clark, Alexander M.; Paton, Gillian.

    In: International Journal of Language and Communication Disorders, Vol. 43, No. 2, 2008, p. 135-153.

    Research output: Contribution to journalArticle

    TY - JOUR

    T1 - Patients' experiences of disruptions associated with post-stroke dysarthria

    AU - Dickson, Sylvia

    AU - Barbour, Rosaline S.

    AU - Brady, Marian

    AU - Clark, Alexander M.

    AU - Paton, Gillian

    N1 - dc.publisher: Informa Healthcare

    PY - 2008

    Y1 - 2008

    N2 - BACKGROUND: Post-stroke dysarthria rehabilitation should consider social participation for people with dysarthria, but before this approach can be adopted, an understanding of the psychosocial impact of dysarthria is required. Despite the prevalence of dysarthria as a result of stroke, there is a paucity of research into this communication disorder, particularly studies that address the experiences of individuals. The available literature focuses mainly on the perceptions of others or includes groups of mixed aetiologies. AIMS: To investigate the beliefs and experiences of people with dysarthria as a result of stroke in relation to their speech disorder, and to explore the perceived physical, personal and psychosocial impacts of living with dysarthria. METHODS & PROCEDURES: Participants for this qualitative study were recruited from twelve hospitals in Scotland that served both rural and urban populations and afforded opportunity for comparison. Semi-structured, in-depth interviews were carried out over a 12-month period with 24 individuals with varying severity of dysarthria following stroke. The interviews were orthographically transcribed and coded using the NVivo package, which also facilitated identification of patterns using the constant comparative method. OUTCOMES & RESULTS: The results of the study indicate that the effects of dysarthria following stroke extend beyond the physiological characteristics of the impairment. In turn, the resulting communication difficulties lead to changes in self-identity, relationships, social and emotional disruptions, and feelings of stigmatization or perceived stigmatization. The impact of dysarthria was found to be disproportionate to the physiological severity, with participants continually striving to get their speech back to 'normal'. CONCLUSIONS & IMPLICATIONS: The findings provide insight into the psychosocial impact of dysarthria following stroke. Speech and language therapy interventions need to go beyond the speech impairment to address and promote psychosocial well being, reduce the likelihood of feelings of stigmatization and changes in self-identity, irrespective of the severity of dysarthria.

    AB - BACKGROUND: Post-stroke dysarthria rehabilitation should consider social participation for people with dysarthria, but before this approach can be adopted, an understanding of the psychosocial impact of dysarthria is required. Despite the prevalence of dysarthria as a result of stroke, there is a paucity of research into this communication disorder, particularly studies that address the experiences of individuals. The available literature focuses mainly on the perceptions of others or includes groups of mixed aetiologies. AIMS: To investigate the beliefs and experiences of people with dysarthria as a result of stroke in relation to their speech disorder, and to explore the perceived physical, personal and psychosocial impacts of living with dysarthria. METHODS & PROCEDURES: Participants for this qualitative study were recruited from twelve hospitals in Scotland that served both rural and urban populations and afforded opportunity for comparison. Semi-structured, in-depth interviews were carried out over a 12-month period with 24 individuals with varying severity of dysarthria following stroke. The interviews were orthographically transcribed and coded using the NVivo package, which also facilitated identification of patterns using the constant comparative method. OUTCOMES & RESULTS: The results of the study indicate that the effects of dysarthria following stroke extend beyond the physiological characteristics of the impairment. In turn, the resulting communication difficulties lead to changes in self-identity, relationships, social and emotional disruptions, and feelings of stigmatization or perceived stigmatization. The impact of dysarthria was found to be disproportionate to the physiological severity, with participants continually striving to get their speech back to 'normal'. CONCLUSIONS & IMPLICATIONS: The findings provide insight into the psychosocial impact of dysarthria following stroke. Speech and language therapy interventions need to go beyond the speech impairment to address and promote psychosocial well being, reduce the likelihood of feelings of stigmatization and changes in self-identity, irrespective of the severity of dysarthria.

    KW - Stroke

    KW - Dysarthria

    KW - Rehabilitation

    KW - Psychosocial

    KW - Severity

    U2 - 10.1080/13682820701862228

    DO - 10.1080/13682820701862228

    M3 - Article

    VL - 43

    SP - 135

    EP - 153

    JO - International Journal of Language and Communication Disorders

    JF - International Journal of Language and Communication Disorders

    SN - 1368-2822

    IS - 2

    ER -